A STUDY TO EXPLORE LIVED EXPERIENCE AND QUALITY OF LIFE OF THALASSEMIA CHILDREN IN SELECTED HOSPITALS OF RAJASTHAN

Abstract

According to World Health Organization as Human beings- Health and health need are a matter of daily concern. Regardless of age, gender, socio-economic or ethnic background, health is considered to be a most basic and vital asset for everyone’s life. On the other hand, sickness can keep away from going to work, from attending family functions and from participating in the activities of the community. By the same time, we are ready to do many more sacrifices if only that would ensure us and our family for a longer and healthier life. In short, when talk about well-being, health is often what and how we are taking it seriously.

Thalassemia is a heterogeneous group of blood disorders affecting the hemoglobin genes and resulting in ineffective erythropoiesis. The decreased production of hemoglobin results in anemia in early age and frequent blood transfusions are required to keep up the hemoglobin levels.